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Showing posts with label Inclusion. Show all posts
Showing posts with label Inclusion. Show all posts

Friday, October 23, 2015

More than awesome part 1


This is how I'd describe my life right now: more than awesome. The past few weeks have been crazy, so many great things have happened.

Let's start with the first one: I graduated! I am now a Bachelors (even though I don't really care because my Master's classes started this week so it really doesn't make a difference).
For my project, I had chosen to do the translation and subtitling of my favorite TV series, Push Girls. The professor liked my idea and I managed to get it done in time for October's graduation session. On the week of my dissertation, a good friend of mine came from Florence and she spent a few days at my place so that she could be there on that day. She is pregnant with her first child (a baby girl!) and I loved spending some time with her and getting to feel the baby moving in her belly.
On the day of the dissertation, my best friend came to my house early so that she could do my hair. We wanted to try a pretty complicated hairstyle and it took forever to get it done, but I like how it turned out. I am very lucky to have my own personal hairstylist! 

The dissertation in itself was not bad, but I had to wait for over two hours until it was my turn. When I got in, I started talking and then I wanted to show a clip from the subtitled episode. I had gone to University the week before just to try the video: everything had worked fine. What we didn't know was that the computer was going to be the same, but they moved it to a different room and they forgot to move the speakers, so my video was mute. Somehow I managed to go on and my final grade was the top grade, so everyone was happy. Later that day, I spent some time with a few friends and my family and we celebrated together.

When I sent a picture of my graduation to my friends in Germany, they asked why I have "a tree" on my head. It is a tradition in Italy. When you graduate University you wear that crown instead of gowns and caps. The laurel wreath was common among poets in the past, now it represents culture and graduation.

The true highlight of the month was my week in Germany, but it definitely deserves a post of its own, so stay tuned! I'll be posting about it soon.


Thursday, June 25, 2015

To my angry "teammate"

You often yell at me for leaving adaptive equipment set up at the gym. You know me, so you know it’s hard, and in some cases, impossible for me to put it away on my own and I have to ask someone to help.
I know you and have never viewed you as a mean person. When you get mad at me, I try not to take it personally. Maybe you just had a bad day. Everyone has bad days.
But I don’t think you’re right. I don’t think you can blame me for leaving the equipment around. It’s not my equipment. It belongs to the gym and it’s where it should be. I don’t complain when I come in and find your bench in place, so why do you have to complain if you find mine?
I know most people on our powerlifting team use the regular bench, but I also know I find it there way more often than you find mine. And I know I can’t move it on my own, but you can.
Today, I saw you walking into the gym as I was parking my car. I knew you’d find the adaptive bench. I just hoped you wouldn’t get mad because I was already exhausted and I had come to the gym to free my mind for a while.
I got in and heard you walk up the stairs. You saw the adaptive bench and got angry. I don’t know who you were talking to, but I heard you when you called me the R-word. I don’t know if you knew I could hear you, but you hurt me.
When you walked down the stairs, you yelled at me and told me I must always ask someone to move the bench when I’m done. I didn’t reply because I wasn’t in the mood to apologize and didn’t want to hurt you. I try to always be nice to people because I don’t know what they’re going through.
This isn’t the first time, and it probably won’t be the last, but I want you to know you hurt a lot people by calling me the R-word. It’s not just about me, it’s about the entire special needs community. I don’t get called the R-word very often because my cerebral palsy only affects my movement, but there are people with special needs who might be called that every single day, and it’s so wrong. I know you probably were just mad and didn’t really pay attention to what you were saying.
A friend of mine once told me if someone gets mad at me because of my special needs, I don’t have to worry about because it only determines the other person’s worth and not mine. But I’m not judging you because I know you, and I know you’re better than that. What makes me a little sad is the fact you know me. I thought you were my teammate and my friend. I used to look up to you, and I didn’t expect you to act like this because I have always been nice to you.
I’m not going to apologize for having special needs and needing extra equipment or extra help. I’m not going to apologize for leaving my bench in place. I’m not asking you to apologize for what you said or did. I’m just asking you to try to put yourself in my shoes. And remember, a little kindness never hurt anyone.

Thursday, May 14, 2015

My essay about inclusion

I had to write this essay for my English writing class and I decided to share it with you before I hand it in. As you know, English is not my native language, please excuse any mistakes. Feel free to contact me with any kind of advice! A big thank you to Philip for giving me a couple ideas.



April 2 is World Autism Awareness Day, which highlights the frequent exclusion of autistic people from school and work opportunities. To what extent do you agree or disagree with integrating disabled people into our everyday life?

Many people think people with disabilities should be separated because they are a “burden” to society. Every single person, with or without a disability, is unique, but that doesn't mean someone should be discriminated against because he doesn't fit in society's idea of normal. It is very important to include every person in everyday life and everyone can contribute to society if they are given the chance to. For example, autistic people are often considered “stupid” or “worthless” because of their unusual behavior, but this is just a prejudice caused by ignorance.

Autistic brains work differently from neurotypical brains. Because of the way their brains work, autistic people may need to move their body or avoid eye contact to be able to think and avoid sensory overload, but that doesn't mean they are mentally challenged. Many autistic people can't talk or communicate in a reliable way, so they are often put in special education. Teachers think they can't learn just because they can't demonstrate understanding in a “standard” way. This is not a solution. Society needs to give these kids accommodations to be heard and teach them in a way that they feel accepted and valued. Just because they can't speak, it doesn't mean they can't think or feel just like anyone else. There are methods such as RPM (Rapid Prompting Method) that allow non-verbal kids to communicate through typing, which allows them to be considered smart and reach their full potential. Such methods could allow inclusion of autistic kids in mainstream schools.
The problem of inclusion does not only apply to autistic people but to people with disabilities in general. The main obstacle to inclusion is society's perception of disability. Disabled people are seen as unable to achieve, they are considered a burden instead of a resource. This mindset leads to one of the biggest problems that we have to overcome in order to achieve full inclusion, that is pity. Pity is an obstacle to inclusion because able-bodied see disabled people as an opportunity to be nice and they feel good because they helped the unlucky ones. People who care about and love someone with special needs are often considered heroes, in the same way as people on wheelchairs, for example, are considered heroes just for getting out of bed and remembering their names.
This is a very dangerous way of thinking because it implies someone doesn't deserve to be loved and accepted as much as anyone else just because of their disability and that disabled people are expected to spend their lives at home doing nothing, so it is surprising to see people on wheelchairs living a normal life.

Many people with disabilities, especially if they are mentally challenged, are given jobs “just to give them something to do”. In many cases, people with special needs work very hard and are often underpaid. The people hiring them take advantage of the fact that in some cases they can't advocate for themselves and they don't have a strong support system to “exploit” them.

In many countries, the school system doesn't do much to include kids with special needs in mainstream education. Let's try to figure out what the obstacles are and what we could do to remove them: different kinds of disabilities mean different kinds of obstacles.
Kids with developmental disorders may find it hard to attend a mainstream school because of their lack of social interaction (as in the case of autism), but they could be gradually included if the school makes an effort to help them overcome their challenges, for example by testing them in a way that they can demonstrate understanding, which may not be the typical way. Some kids, for example those with Down Syndrome, have intellectual disabilities that may prevent them from keeping up with the other kids' schoolwork, these kids will have different tasks if necessary, but that doesn't mean they shouldn't be able to do their best and be around their non-disabled peers.
Kids with physical disabilities may have trouble attending school because of physical obstacles, such as stairs or lack of equipment (computers, special desks and so on). These problems are really easy to solve and public schools should make an effort to make the school buildings accessible to kids of all abilities. Inclusion does not only benefit kids with special needs, it also teaches other kids respect for all people and increases their understanding and acceptance of diversity.


People are only disabled when the environment around them doesn't enable them to reach their full potential. By eliminating the obstacles to inclusion, we turn the disability into a distinctive feature, which is not something bad, it is just part of a person and it has to be embraced. If we make an effort to fully include people with special needs in society we will learn to see the world from a different perspective and free our mind from prejudice. Inclusion is something we could all benefit from.

Saturday, April 25, 2015

#WCMXlove

Zac, Mike and I in 2010
As I am sitting here writing my essay for my English class, I can't help but think about my friends from the WCMX family. The WCMX World Championship is taking place this weekend in Dallas, Texas.
I am so happy for them because they get to spend some time all together and have fun shredding. A few days ago, when my WCMX friends from Germany left for Dallas I was so excited for them I even followed their plane on a website called flightradar24. I had a big smile on my face when the plane hit the ground. They were there, ready live their dream, that is my dream as well, and I felt like a little piece of me was there with them. I know they are having so much fun and I can't wait to see all the pictures and videos.
At the same time, I am very sad I have to be sitting at my computer getting schoolwork done while almost everyone from the WCMX family is having a blast in Texas. I can't wait to be done with my Bachelors this fall because I know I will most likely be able to travel to the US in summer 2016 and spend some time with the WCMX family before I start focusing on my Master's.

Now let me tell you what WCMX is and what it means to me:

Can you tell I love Philipp's Box chair?
WCMX is an awesome sport, it's similar to skateboarding or BMX, but instead of using boards or bikes we ride on our wheelchairs. The pioneer of this sport is Aaron Fotheringham, but we call him Wheelz. I have told you about the time I first met him here.
To me, WCMX means hope, it means happiness, love and fun. WCMX means dreams do come true. 
I love the WCMX family so much. As you know Aaron was the first one to make me feel good about my chair. After him, I have met other members of this awesome community: Linda and Zac, who is like a little brother to me; Mike Box, an awesome man who puts his heart and soul into building the best chairs for athletes to shred with and most importantly wants to make people happy; David and Lisa, the best friends and WCMX trainers I could ever ask for, who can always make me feel loved and accepted, even when I fall out of a train because I suck at wheelies; Philipp, who is so patient with me and lets me ride his WCMX chair just because it makes me very happy =P
I love this sport because it is full of love and fun, and we can all have fun together, no matter who we are or where we come from. Sometimes there are misunderstandings and different ideas, but I think we should all stick together and focus on our passion, on what we all love to do. It doesn't matter how you call the sport or who made the chair you ride on, the only thing that really matters is that we can shred together and learn from each other. What is important is that we can show the kids that they can have fun on their chairs and that their disability doesn't have to be a curse, it can be a blessing.
Many people don't understand my love for skating and WCMX, because they think it's stupid and dangerous, but I don't care. It is a passion I have always had and it won't go away. I am proud of it and I think the greatest risk in life is not taking any risk. Even though I am not a very good athlete, I love WCMX and I always will. No matter how many times I'll fall, I will try again.

Philipp, Wheelz and I


Saturday, April 18, 2015

Is this support or just another obstacle?


I was watching TV a few days ago and I saw this ad. It is in Italian, so I'll translate the words for you. It says something like:


"When a baby is born with CP, everything stops for that family, every normal life, every future dream...Please send an SMS and donate to support these families..."



You know I have cerebral palsy and this ad made me think about the way disability is represented in the media and the message that comes across.

I wanted more opinions about it, so I asked a few of my CP buddies to watch the video and share their thoughts with me. Here is a short summary of what we have to say:

  • Nothing stops for the family! Of course, a child with a disability is something they didn't expect and didn't wish for and it will change their lives but it won't stop anything. Any child changes the life of his family. Things can get harder when the baby has CP but it is not a tragedy!
  • A kid with a disability can have a normal life, if society allows him and his family to enjoy it without having to face judgement and ignorance.
  • Families with disabled children do have dreams, just like any other family! They might be just a little bit different from the ones they had before the diagnosis but they don't disappear.
  • They keep showing a picture of the little girl where she doesn't smile or do anything, she is smiling in every single one of the other pictures. They clearly want people to pity her. They think that if people feel bad for children with CP they will donate more money.

Here's what they don't think about: what are people going to think about these children and their families? 
They will think that they are unlucky and that their life sucks. They will think that they are worth less than other children, that they are broken and need to be fixed. Society will consider them unable to take care of themselves and become successful adults. They will be considered a burden. People will donate a couple euros and feel good because they helped those "poor children". 

This message does not help families of kids with CP. You know what would help them a lot more than that money? A positive image of disability. An ad to show the world what they are able to do, to show their strength instead of their "weakness". A chance to prove their value. 

They need help eliminating the prejudice: you are just making it stronger. You are making their life harder. Families of children with CP need your understanding more than they need your money. The change they want to see is in your mind, not in your wallet.


Sunday, April 12, 2015

How "special" are their needs?


In this TEDx Talk, "inclusion expert" Torrie Dunlap speaks about society's perception of kids with special needs. These are pretty basic ideas, and I don't think we should have to have an expert talk about these simple things. Unfortunately, many people, especially outside the special needs community, still consider these ideas innovative or "revolutionary". This is why I am sharing this speech with you.

I will now highlight the most relevant parts and give you my point of view:

I proudly showed her the cut out where she would sit in her wheelchair. I will never forget what happened next. She looked up at me and said, “How come I don’t get to sit on the bleachers like the other kids?” 

Many people simply assume kids with disabilities always need some kind of special accommodation: this might be the case, but it is not always so. We should always ask the person instead of making assumptions.

when we use the medical model as our way of perceiving disability we view children who have them as a problem that need fixing, and we separate them from their peers without disabilities. This is why we often lead with pity- we feel sorry for people who are broken and need fixing and we feel charitable by helping them

As I have said before, disability should not be seen as a problem that needs to be fixed. A kid with special needs is just like any other kid, disability is a part of him and there is nothing wrong and nothing to feel sorry for.

We feel good that we have done something kind for “those poor children.” We make a lot of assumptions here that children who have disabilities have a poor quality of life, can’t learn and can’t achieve.

It makes me really mad when people assume kids with disabilities can't be happy, successful and have a good quality of life just because they can't walk or talk or do something that is considered very important. The problem is that many people who do not have special needs see a disability (for example being on a wheelchair) as something very negative and they don't think they could be happy in that situation. This idea is so present in their minds that they can't even change their opinion when they see a happy kid in a wheelchair, because their prejudice is too strong.

When speaking about the social model, Torrie says we should view societal barriers as the problem, and not the child. Disability is perceived not as a negative, but as neutral. I think this is a much better mindset, because the child's disability would not be a problem if society accepted it and embraced diversity instead of separating the people who are considered "different".

Dunlap also speaks about events targeted at kids with special needs:

Why do children who have a disability label need their own special rodeo? What message are we sending to kids when we create a separate rodeo just for them?

I think it is good to have events for kids with disabilities, but these events should be related to their needs (for example wheelchair sports events), and even in this case it would be nice for kids without disabilities to be able to participate and try something new. In case of a rodeo, which is a general event, I think it is wrong to have a separate event just for them. All kids, with or without special needs should be invited and they should be able to have fun together.

I know that as adults we worry about, and we care about kids who might get left out of the prom experience, because they are different. High school is a tough place. But, what if we instead looked through a different lens and put our energy toward making sure that every high school prom is welcoming and inclusive to all the students who attend the school?

Special proms for teens with disabilities are not a solution: they would probably feel even more excluded, as if they were not good enough for the "normal" prom. We need to focus on making the existing prom an awesome experience for students with and without disabilities.

I wonder what underlying message we are sending, both to the teens with disabilities who may hear us say that they aren’t welcome at a school event on their campus with kids they have gone to school with, and also to the volunteer teen “escorts” and what message we are sending to them about pity and helplessness and separation by ability. And, really, would you have wanted your mom watching you at your prom through a video feed?

The fact that volunteer students get "credits" for helping with special prom makes it look like something that you wouldn't do if it wasn't for this credit. It also makes them think that they have to pity their schoolmates with special needs and that they can't take part in the regular prom. I know that parents of kids with special needs very often worry about them, but a video feed at prom is too much. Security staff would be enough.

I leave you with these questions, and I hope these ideas will soon be too common for a TEDTalk.

How do we want to be included in our communities? How do we want our children to be regarded? As something fragile, broken and “special” or as people who have a right to belong in our communities? I believe that when we examine our own mental models toward disability, we won’t default to pity and charity but will focus our efforts on making our society accessible to everyone, and everyone will benefit.